How to Comply with the Ethical and Legal issues in Research Institutions: a Focus on General Data Protection Regulation (GDPR) in Scientific Research
Relatori: Prof. Giovanni Comandé – Sant’Anna School of Advanced Studies, Prof.ssa Cristina Amato – University of Brescia, Dott. Mario Guglielmetti - European Data Protection Supervisor, Dott. Thierry Bourgeois - Directorate-General for Research Directorate C – Science and Society Unit C3 – Ethics and Science, Dott. Gianclaudio Malgieri - VUB, Dott.ssa Fosca Giannotti - CNR, Dott.ssa Francesca Torelli - Chair of the SSSA and SNS Joint Ethical Committee, Prof. Michele Emdin – Sant’Anna School od Advanced Studies, Dott.ssa Concetta Tania Di Iorio - University of Tor Vergata, Dott.ssa Silvia Scalzini - Luiss Guido Carli, Dott.ssa Danielle Borges – Sant’Anna School od Advanced Studies, Dott.ssa Denise Amram – Sant’Anna School of Advanced Studies and Scuola Normale Superiore, Dott.ssa Monia Gentile – Sant’Anna School of Advanced Studies
Data Protection • Research • Ethics • Case Studies
Scuola Superiore Sant’Anna | Pisa
Aula Magna Storica
27TH May 2019
Accreditato per n. 5 crediti formativi ordinari non frazionabili presso il Consiglio dell’Ordine degli Avvocati di Pisa
9.30-10.00 Registration
10.00 – 10.30 Greetings and opening remarks, Giovanni Comandé
10.30 -11.15 GDPR and research activities: misunderstanding of compliance requirements, threat or opportunity?, Aurelie Pols, Member of EDPS Ethics advisory board
11.15 - 11.30 Q&A
11.30 -12.30 What is the Impact of GDPR on Universities and How to Cope with It?, Mario Guglielmetti, Legal Officer at European Data Protection Supervisor
12.30 – 12.45 Open Discussion
12.45 - 13.45 Lunch Break
13.45 – 15.15 Discussing the Legal and Ethical Draft for Consent and Automated Decisions for EU Research Projects from PANELFIT Project, Gianclaudio Malgieri, WP Leader of PANELFT Project, VUB
SoBigData Research Infrastructure: tools for Open and responsible Data Science, Fosca Giannotti, Coordinator of SoBigData, CNR
Discussants: Mario Guglielmetti, Giovanni Comandé
15.15 – 15.30 Coffee break
15.30 – 17.30 Hand on Discussion and Case Studies: Ethical Issues and problems in research units.
- Ethical and Legal Issues in research: the experience of the joint Ethical Committee of the SNS and SSSA, Francesca Torelli, Chair of the SSSA and SNS Joint Ethical Committee
- Ethical Issues in Clinical Research, Michele Emdin, Sant’Anna School of Advanced Studies
- BRIDGE Health a sustainable and integrated EU health information system for both public health and research purposes, Concetta Tania Di Iorio, University of Tor Vergata
- The Legal and Ethical Dimension in Artificial Intelligence Research: constrains or opportunities?, Silvia Scalzini, Luiss Guido Carli
- Ethical Issues in Research with Migrants, Danielle Borges, Sant’Anna School of Advanced Studies
- Towards an Accountable Ulysses: the Role of the Data Protection Officer in the Universities, Denise Amram, Data Protection Officer at SSSA and SNS
Exploitation of Research Results and Knowledge Transfer, Monia Gentile, Sant’Anna School of Advanced Studies
17.30 Conclusions: Caterina Sganga, Sant’Anna School of Advanced Studies
Farwell, networking, and end of the Workshop.